Madness string 101333

Random mermaid
There aren't a ton of great autism orgs out there. The one I know of that isn't awful is the Autistic Self Advocacy Network (ASAN), and they have recently had some concerns come to light involving internal racism and bad management. I can tell you to put a country mile between you and Autism Speaks (anything branded with puzzle pieces typically ties back to them). They are the PETA of autism advocacy.
Medicine has gotten too good at keeping people alive. Kids would sit for months and months connected to CRRT (dialysis) and ECMO (heart/lung machine) literally wasting away before ultimately dying. And when they die they don't resemble anything like a kid. They look like puffy little aliens who sometimes have lost the perfusion to their hands and feet so now they're dead and black. It's horrific and I can't imagine putting a child through that. I also cannot imagine spending my days sitting in a hospital room watching that happen to my child.